The sad news we received earlier this week about the passing of 6-year-old Sullivan "Sully" Ustruck, only reinforced for us the importance of the mission of Make-A-Wish® Wisconsin...We grant the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy.
We'd just spoken with Sully's parents, Bill and Melissa Ustruck, a few weeks ago during our Make-A-Wish® Radio-A-Thon about his rare neurological disorder that he had only been recently diagnosed with...Batten Disease. Up until a few months ago, they thought Sully suffered from Epilepsy. Sully's younger brother, Colton, has been diagnosed with it as well.
Fox 6 recently featured the Ustruck family as well...Fox6Now.com
Please remember Sully and the thousands of children like him in Wisconsin who are suffering from life-threatening medical conditions and consider donating to Make-A-Wish® Wisconsin.